Every little life matters and deserves to be celebrated
I created this page for Say Their Name Day to raise funds for Red Nose so they can continue their important work supporting bereaved families across Australia.
In 2020 we lost our gorgeous boy Logan to HLHS and PWS. Every day we remember our little man and share his story whenever possible. Our son was here, he mattered and continues to matter 💙 ❤️
If you can support my fundraiser, you will be helping to bring care and comfort to families when they need it most.
Every dollar raised helps support bereaved families by making sure every family has access to the information and networks they need to move forward and rebuild their lives, now and in the future.
That means timely access to information resources, an understanding voice on the end of the phone, and an ongoing connection with other families through support groups and remembrance activities.
So please, help me raise much-needed funds to ensure every bereaved family has access to the support they need, for as long as they need it.
Thank you.
My Updates
Writing from the day our life changed
Saturday 22nd Mar Im wide awake. Its 2am on the 11th July 2020 and yesterday we found out our baby has Hypoplastic left heart syndrome.Im shattered. Im lost. Everyone has been so nice and caring but I just want to be able to cry without feeling like I should be brave. My doctor sent us to a bigger Hospital for testing after he saw something on the ultrasound.
There we saw a specialist and she confirmed her diagnosis. We see a cardiologist some time this week. Then we will have to come to sydney every few week for check ups and ultrasounds.
Im going to quit my job. I cant keep working there and running myself ragged when I need to focus on Bubba Boy and his health.
I had an amnio test yesterday and that has had me on edge all night. We have stayed at my partners parents place even though his mum is sick and they have had her get a COVID test. We just needed to stay near bigger hospitals and his family. Incase something happened.
I will have to move down here and away from the family at 36-38 weeks as long as he lasts that long because I need to have him at the bigger hospital so they can take him straight to the Kids hospital. Then he will have the first of 3 surgeries.
The 2nd surgery will be at 2-3 weeks old and the last when hes about 1. They will all be open heart surgeries where they need to put a shunt in and fix his valves. The left side of his heart pretty much doesn't work at all so he will need major help to get the right side of his heart to do most of the work.
They have said I can have a natural birth and I hope he can stay for the first hour with us before he has to be taken away. If he can't then i will just do my best to get to him as soon as possible.
Im going to look into the Ronald McDonald house for some time over the Christmas holidays so perhaps we can live there with the children for a week or two and they can maybe see Baby Boy or he can come there too. I dont know right now. Im going to write things down so I dont forget to get onto them.
Our life as we knew it is over. I morn for that life now. So simple and relaxed. When I planned so much and now all that matters is his survival. Share
Thank you to my Sponsors
$31.65
Leiza
$10.55
Samara Fox
We love you forever Logan. Uncle Ry, Sam, Abigail and Zoey
❤️